The Evelyn V. Hess Award is given annually to recognize the exceptional contributions of a clinical or basic researcher whose body of work has advanced the understanding of the science of lupus treatment. At a reception during the 2018 ACR/ARHP Annual Meeting in Chicago, the Lupus Foundation of America presented the Evelyn V. Hess Award […]
SLE (or lupus for short) is a multisystem, autoimmune disease, involving complex pathogenetic mechanisms that can present at any age. It most commonly presents in women in the reproductive age group, although lupus is increasingly recognized after the age of 40 years, particularly in Europeans…
Systemic lupus erythematosus is a multisystem, chronic autoimmune disease characterised by the presence of antibodies directed at self-antigens, and broad immune dysregulation. It is believed that abnormalities of both the innate and adaptive arms of the immune system, interconnected by a positive feedback loop, contribute to disease pathogenesis.
Dr Marwan Bukhari and Dr John Hanly, Queen Elizabeth II Health Sciences Centre and Dalhousie University, Halifax, Canada, talk about his paper on the frequency and outcome of lupus nephritis in a prospective SLE inception cohort. In the SLICC inception cohort study, 38% percent of patients developed lupus nephritis within the first 5 years of […]
John Hanly, born in Ireland, obtained his medical degree in 1978 at the National University of Ireland in Cork. Following post-graduate training in Internal Medicine and Rheumatology, he relocated to Canada in 1984 for fellowship training in Clinical Immunology and Rheumatology at the University of Toronto. Additional research training followed at McMaster University and Cornell […]
Dr. Évelyne Vinet, a rheumatologist and an Assistant Professor in the Division of Rheumatology at McGill University’s Faculty of Medicine, has been selected as the 2018 recipient of the Canadian Rheumatology Association’s (CRA) Young Investigator Award. Dr. Vinet, who obtained her PhD from the Department of Epidemiology, Biostatistics and Occupational Health at McGill, focuses her […]
A number of presentations over the past few days have addressed the health economics of SLE. Clarke et al (abstract 2811) studied the costs associated with damage states in a large Canadian lupus cohort as well as in the SL ICC cohort (abstract 2925).
Dr. Ramsey-Goldman is globally recognized for her clinical skills, diversity of her research efforts and focus on lupus. Over the past 30 years, she has worked at the interface between immunology and rheumatology, and has undertaken several major committee assignments for the American College of Rheumatology (ACR), National Institutes of Health (NIH), and the Systemic […]
Dr. M. Urowitz has recieved the American College of Rheumatology’s 2017 Distinguished Clinical Investigator Award. This distinction is awarded to a clinical scientist making outstanding contributions to the field of rheumatology. This award was known as the Clinical Research Award prior to 2006.
Dr. W. Winn Chatham has received the American College of Rheumatology’s 2017 Distinguished Clinician Scholar Award. This distinction is awarded to a rheumatologist who has made outstanding contributions in clinical medicine, clinical scholarship, or education.
The winner of this year’s Hess award is Dafna Gladman, MD, who is a rheumatologist at the Center for Prognosis Studies, Toronto Western Hospital, Toronto Canada. Dr. Gladman is co-director of the University of Toronto Lupus Clinic and has undertaken numerous and wide-ranging studies of the disease including genetic analyses, studies of morbidity and the […]
We are happy to report that many of our participants have been followed for more than 10 years. It is hard to believe this registry began in 2000. Our very first enrolled patient is now at 15 years of follow-up. Achieving our goal of 1800 participants has allowed us to study the long term effects […]
We are happy to report we have reached our recruitment target of 1800 patients. This constitutes the world’s largest cohort of newly diagnosed SLE patients assembled to date! Achieving our goal of 1800 patients has marked the end of the beginning as we are now in the long term follow phase of the study. This […]
Our original goal for the registry was to enroll 1650 patients and follow these patients for a 10 year period. We are happy to report that many of you are just beginning to reach the 10 year follow-up mark. We have now extended our follow up from 10 years to as long as you wish […]
We are pleased to report that we are now close to our new recruitment goal of 1650 participants. As of May 2009, 1408 participants have been enrolled in the Registry. This constitutes the largest cohort of newly diagnosis SLE patients assembled to date!